We can never thank Dr Skelton, our local paediatrician, enough for the care he gave Alyssa after she was born with an undiagnosed CDH. He literally spent hours hand ventilating her until the NETS team arrived as the hospital she was delivered in didn’t have a suitable ventilator. After Alyssa passed away he organised an appointment for us to see him so he could answer our questions and let us know we could contact him at any stage if we needed to.
We have made special friends with a few of Michael’s nurses & keep in regular contact with them. Particularly one, who was his very first nurse & assisted in his repair surgery … She’s now a huge part of our family!