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  • Get Support
    • What Is Congenital Diaphragmatic Hernia?
    • Peer Support
    • Booklet: Expecting a CDH Baby?
    • Frequently Asked Questions
    • Fact Sheets
    • Videos & Webinars
    • Hospital & Medical Institutes
    • Useful Links & Information
    • Financial Assistance
    • Crisis Support, Counselling and Specialised Services
    • Grief & Loss
  • News & Events
    • Christmas videos
    • Events
      • CDH Sunflower Sunday 2020
    • Latest News
  • Be involved
    • Make a donation
    • Fundraise for CDH
    • Become a Member
    • Volunteer with us
  • About Us
    • Brief History
    • Ambassadors
    • Governance & Board
    • Annual General Meetings
    • Annual Reports
    • Our Stories
    • Privacy Policy
  •  

Brief History

When her daughter Alyssa was born undiagnosed with a diaphragmatic hernia in May 1992, Danielle Kessner didn’t know what CDH was nor know anyone who had been affected by it. When her precious daughter died the day after she was born Danielle found herself in a very lonely place.

It took seven years, and the advent of the Internet, for her to discover other families, at which time she was determined to make sure other families in Australia were not alone in their CDH journey.

As well as personally supporting and connecting families, Danielle began facilitating annual forums in 2001 bringing families and medical professionals together to provide peer support and share knowledge.

To honour Danielle’s compassion and relentless hard work over 13 years of being President of CDHA, Danielle was awarded with CDHA’s first Honorary Life Membership in 2013.

Today, CDHA continues to strive for Danielle’s vision for no family to face CDH alone.

Make a Donation

CDH Australia is led by volunteers and relies heavily on donations.

All donations over $2.00 are tax deductible and can be made in honour or memory of individual CDH children.

Donate here

Contact Us

Email Support Services or call on 1800 149 562.
Events, media enquiries and general information
Crisis Support & Counselling
CDH Community News

Postal address:
CDH Australia
PO Box 5034
North Geelong VIC 3215

Media
  • Australian lab first outside of China to copy coronavirus, helping vaccine push
  • Miller Lewis Dray, forever one day old
  • What It’s Like Being Told Your Baby May Only Live A Few Weeks
  • Finding out that one of our twins had a Congenital Diaphragmatic Hernia
  • Luca’s memory honoured
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