No Family to Face CDH Alone

Get Help NowDonate Here

What is CDH?

Congenital Diaphragmatic Hernia

The diaphragm is a muscle that helps us to breathe and separates the chest cavity from the abdominal cavity. It develops in early foetal life. Congenital diaphragmatic hernia is the absence of the diaphragm or, more commonly, the presence of a defect in the diaphragm.

It can occur on either the left or the right side, or be bilateral, but is most common on the left (80%).

As there is a defect in the diaphragm, the abdominal contents including the stomach, intestine, liver and spleen can be displaced into the chest cavity. CDH is usually an isolated condition, although other congenital anomalies, most commonly cardiac, may be associated and influence the prognosis.

Since these organs are in the chest cavity and not where they are supposed to be, the lungs have insufficient space to grow normally and are therefore smaller than they should be. The determinants of survival include the degree of underdevelopment/undergrowth of the lung and the supplying blood vessels with associated pulmonary hypertension, as well as the gestation of the

-Dr Nadia Badawi, Consultant Neonatologist.

-Dr Hunt (FRACP, MRCP (UK), MMed, PhD) is the Director of the Department of Neonatal Medicine at The Royal Children’s Hospital in Melbourne

We’re here for you

We’re the only Australian charity providing support for families, friends and medical professionals affected by Congenital Diaphragmatic Hernia(CDH). We support families throughout their CDH journey; expectant parents of a baby diagnosed with CDH, families caring for a CDH child, adults with CDH and bereaved families. We seek to minimise the social, financial and mental health impacts of CDH.

What we do

Some of the practical ways we help CDH families include:

• producing and distributing educational content about CDH
• facilitating face-to-face health and wellness forums for CDH families
• hosting awareness day picnics to raise funds and strengthen our community,
• providing support services through peer-matching and online support groups.

Our support service team members are parents with personal experience of CDH, who understand the issues families face and will support you with compassion and empathy.

How to access our services

Please reach out, we’re here to support you along your CDH journey.

Find CDH information here

Join our online support groups on Facebook

Use our contact form or Email us

Fun runs are back!

Raise funds and awareness for CDH families

Check out our 2021 running event calendar HERE

Fun run 2021

Volunteering opportunity available

Treasurer – Board Member

Role description and application available via Seek Volunteer


CDH Affects 1 in every 5,000 Live Births in Australia.