No Family to Face CDH Alone

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CDH Sunflower Sunday 2020

CDH Sunflower Sunday 2020

CDH Sunflower Sunday is our annual awareness day event to support one another and raise the profile of the rare birth condition, congenital diaphragmatic hernia. It’s a beautiful day with one goal: to ensure no family faces CDH alone.

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Dr Rod Hunt explains what Congenital Diaphragmatic Hernia is

Dr Hunt (FRACP, MRCP (UK), MMed, PhD) is the Director of the Department of Neonatal Medicine at The Royal Children’s Hospital in Melbourne

What is Congenital Diaphragmatic Hernia?

Dr Nadia Badawi, Consultant Neonatologist.

The diaphragm is a muscle that helps us to breathe and separates the chest cavity from the abdominal cavity. It develops in early foetal life. Congenital diaphragmatic hernia is the absence of the diaphragm or, more commonly, the presence of a defect in the diaphragm.

It can occur on either the left or the right side, or be bilateral, but is most common on the left (80%).

As there is a defect in the diaphragm, the abdominal contents including the stomach, intestine, liver and spleen can be displaced into the chest cavity. CDH is usually an isolated condition, although other congenital anomalies, most commonly cardiac, may be associated and influence the prognosis.

Since these organs are in the chest cavity and not where they are supposed to be, the lungs have insufficient space to grow normally and are therefore smaller than they should be. The determinants of survival include the degree of underdevelopment/undergrowth of the lung and the supplying blood vessels with associated pulmonary hypertension, as well as the gestation of the

Want to Talk?

If you need to speak with one of our volunteers, complete this form and we’ll contact you as soon as possible. You can also call us on 1800 149 562.

Support services

We’re the only Australian charity providing support for families, friends and medical professionals affected by Congenital Diaphragmatic Hernia(CDH). We support families throughout their CDH journey; expectant parents of a baby diagnosed with CDH, families caring for a CDH child, adults with CDH and bereaved families. We seek to minimise the social, financial and mental health impacts of CDH.

What we do

Some of the practical ways we help CDH families include:

• producing and distributing educational content about CDH
• facilitating face-to-face health and wellness forums for CDH families
• hosting awareness day picnics to raise funds and strengthen our community,
• providing support services through peer-matching and online support groups.

Our support service team members are parents with personal experience of CDH, who understand the issues families face and will support you with compassion and empathy.

How to get help

Please reach out, we’re here to support you along your CDH journey.
Discover our support resources here
Join our online support groups on Facebook
Email us directly

CDH Affects 1 in every 5,000 Live Births in Australia.

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